Legacy Project: Road to Discovery 2016

Author: Janaeé Wallace

Since 2010, spearheaded by Greg Crawford, Ph. D., the College of Science at the University of Notre Dame has contributed heavily to the Ara Parseghian Medical Research Foundation with “A Road to Discovery”. The Ara Parseghian Medical Research Foundation focuses on Niemann-Pick Type C (NPC), which is a genetic, cholesterol storage disorder that primarily strikes children with death before or during adolescence. NPC is classified as an orphan disease meaning that it is a condition that affects fewer than 200,000 people throughout the United States. Crawford’s five-year journey riding towards a cure accumulated nearly 15,000 miles across the US all in the name of NPC.


After hearing Crawford's stories about his journey to pebble beach and how he would be hanging up his bike, this year’s ESTEEM class decided to take on the challenge of “A Road to Discovery”. That being said, the esteemed class of 2016 is proud to present our legacy “A Road to Discovery: Powered by ESTEEM”. We have taken on the challenge of biking 350 miles from Louisville, Kentucky to South Bend, Indiana with the aim to raise at least $150,000 for the NPC.

We all have been biking 4 days a week. We bike individually throughout the week and then meet on Saturdays at the Knute Rockne Memorial gym in the spin room for a cardio intensive, power ride for hours filled with laughs, fun, sweat, and pumping music. This has been a lot of fun thus far and is a great way to build team morale, and remember that we’re all in this together.


Now 19 students are training their minds and bodies to ride towards discovering a cure for NPC and working towards the goal of $150,000. You could help us with this by giving a gift of:

$10/mile $3500

$1/mile $350

$0.10/mile $35

at Niemann-Pick ND